Showing posts with label society. Show all posts
Showing posts with label society. Show all posts

June 15, 2018

Sound or Silence? The Pros and Cons of Cochlear Implants

Cochlear implants (CI) have been in use for several decades, yet there is still an active controversy surrounding these devices. While some people strongly advocate for the positive effect on an individual’s life, others claim that implants are dangerous both to individual health and to deaf culture at large [1].

PRO
Even though a CI cannot provide 100% hearing capability, it enables the individual to hear and understand most sounds. A cochlear implant does not amplify sounds like common external hearing aids, but stimulates the auditory nerve. The implant essentially replaces the function of the hair cells in the inner ear that usually register sound vibrations.  
Most importantly, a CI enables the individual to hear itself and thus learn to speak and articulate, and thus an implant helps to communicate with hearing people who do not know sign language. It also saves from  lip reading and generally depending on others for hearing help.
Another great advantage of having a CI for young people is that it can help them fully participate in mainstream schools and society, as well as broaden their career choices. While they may still be limited, the limitation won’t be as severe or as disabling as if they had no hearing choices available to them.
Being able to hear is also a measure of safety: the ability to locate sounds allows you to be more aware of perilous situations and hear impending danger such as a car coming from behind.

Blausen.com staff (2014). "Medical gallery of Blausen Medical 2014". WikiJournal of Medicine 1 (2). DOI:10.15347/wjm/2014.010. ISSN 2002-4436. - Own work, CC BY 3.0, https://commons.wikimedia.org/w/index.php?curid=29025007


CONTRA
CI require a surgical insertion and obviously surgery of itself always bears risks. Since the device has become available, risks have been minimized, however, complications may include occasional facial numbness or minor facial paralysis. Among individuals wearing a CI, there is also higher incidence of bacterial meningitis than for the general population. Thus an immunization is recommended. The body may also reject the implant, which could require removal or further surgery.
It is important to keep in mind that a CI doesn’t guarantee that a person will be able to hear and speak at a normal level. In some cases, the person with the implant can only hear some environmental sounds. Particularly for adults who receive the implant, electronic signals might not register fully and some hearing impairment may still occur. Also it is important to acknowledge that the auditory cortex is not used to process sound in the same way if a person has been deaf for a long time, so a CI wouldn't help much. 
Thus parents of hearing disabled children are urged  to make a decision as soon as possible for their child. Most people with an implant still need special help in learning to speak and in many cases they will still be stigmatized. Even though they can hear and speak, their hearing capabilities are not the same as a hearing person's [2]. Luckily, the devices are getting better and improved sound perception lets the wearer of CI integrate better into mainstream society.
Obviously, it takes time to get used to the implant and especially in the beginning, many need to get the CI reprogrammed according to their needs. Also, people with CI are limited on some physical activities, especially those involving contact with water, as this could damage the implant.

Controversy in Deaf Society
The primary controversy regarding CI concerns the definition of deafness as a disability. Recently journalist Enno Park gave a talk at the Berlin re:publica conference , where he spoke about his very personal view on the two (hearing and non-hearing) sides of society [3].
The medical community generally regards deafness as a disability that should be treated, and mainstream (hearing) society is of the opinion that hearing allows for a more fulfilling life. Meanwhile, many individuals who are deaf, as well as others who are familiar with non-hearing society feel that deafness is a cultural identity rather than a disability [4]. As a result, they feel that CI implies that there is something wrong with them that needs to be fixed, and that living as a person with a hearing impairment is inherently less fulfilling than as a "normal" person. Thus, these members of the community perceive putting something technical in their brains as serious affront.
Within the non-hearing community, there is a long history of disagreement: Some signing people feel that CI wearers are betraying their culture. Some even go as far as to describe implantation of children as “child abuse”. Also, with more people wearing CI, the need for sign-language interpreters decreases to the disadvantage of those who still rely on their services. On the other hand, parents that do not want their children implanted have to deal with hostility not only from the hearing community, but also from CI-wearers.




--> Get an idea how sound is perceived, through a CI! <--




Interestingly, the attitude towards sign language differs from country to country. In Germany and France, most people working in deaf education even don't speak sign language, and emphasis is placed on children learning to lip read [2,3]. In contrast, in the US, every police department should have one or more interpreters available on call [5]. It is likely that these attitudes and values will change over time, both with the rise of improving hearing technology and activism from within the deaf community.
The decision to receive a CI is a very personal one that should be considered with the help of a medical professional. Every parent with a hearing disabled child needs to decide for themselves what the best choice for their situation is.

Claudia Willmes
PhD Alumna, AG Eickholt / AG Schmitz

Background:
From 2007 to 2008 I worked at the Institute le Bruckhof in Strasbourg, France -  an institution for hearing disabled children, where many children wore cochlear implants [6]. They received special training in learning language and were encouraged to read lips instead of using sign language. However, I also took classes in an adult education center to learn DGS (German sign language) for one year and attended the university in Strasbourg to learn LSF (French sign language). Thus, I heard opinions from all sides: the hearing, the hearing disabled and signing, and those wearing CI.

[1] www.nad.org
[2] personal communication
[3] talk by Enno Park https://bit.ly/2K3MO8P
[4] Ohio University, The Institute for Applied & Professional Ethics https://bit.ly/2wxdrBg
[5] U.S. Department of Justice  https://www.ada.gov/q%26a_law.htm
[6] www.bruckhof.org/
 

Like what you see? Interested in contributing? We are always looking for new authors and submission on anything related to the topic of (neuro)science. Pitch us an article, or send us some beautiful shots from your microscope, poems to claudia.willmes@charite.de!  


January 10, 2018

Age and Aging Societies

It is common knowledge that Western societies are facing demographic change. But why is it a problem everyone is concerned about?

Germany's Demographics 
Demography is the social science dealing with statistical measures of populations, including humans. It analyzes several features of populations (including age, health, reproduction as well as migration, education and religion) in order to extrapolate future development. In Germany, the Federal Statistical Office which monitors demographics, estimated the number of inhabitants in 2014 to be more than 80 million people (the 16th most populous country in the world). The estimated average life expectancy is 81 years and the fertility rate is 1.4 children per woman [1] (in contrast to Somalia where life expectancy is less than 50 years and the fertility rate is 6.4 [2]).

Paying it Backward? 
These numbers summarize what the demographic change looks like: higher life expectancy with fewer births. People live longer due to better hygiene and medical care. In addition, the more young people are educated and socio-economically situated, the fewer children they have. This is called the demographic-economic paradox [3]. Especially in Germany, the demographic change is critical as the social and health insurance systems are based on an idea called the intergenerational contract (Generationenvertrag). This system, implemented after the Second World War, required jobholders to pay taxes into a pay-as-you-go system to provide financial security for a limited number of elderly retirees [4].
Back then, considering the shape of Germany's population pyramid, the system made sense. People born in these years (1945 -1965) are today commonly referred to as baby boomers [5], which justifies this concept. However, birth rates dropped steadily by 1967, plateauing since 1990 to their current levels. But, low birth rates do not keep people from aging, they only lead to fewer people taking care of an increasing number of older people. Thus, aging of the population is a socio-economic problem, which has to be addressed by significant changes in the financing of social pension programs.

Bevoelkerungsentwicklung DeutschlandAdapted from Wikipedia bit.ly/1PMBcCr


Healthcare and Aging Populations 
Retirees are getting older: With improved medical care, the life expectancy at birth rose from an average 50 years in 1900 to an average 78 years in 2008, with women living several years longer than men [6]. Unfortunately, most people do not remain healthy in old age, but develop several age-related comorbidities.
This adds to the socio-economic costs of an aging society, as healthcare burdens increase, with rising costs and a lack of staff. To make things worse, the diseases of the elderly will be accompanied not only by an increase in the number of cases, but also an increase in complexity. Although personalized therapy is a promising solution for many diseases, it requires more extensive diagnostics – this eventually leads to imbalances in the ratio of workload to qualified personnel in the medical sector [7].
In addition, the changes in household structure also play a major role in the outbreak and spreading of infections. In the olden days, families were large and infections spread easily, whereas now families are much smaller. Today, however, those opposed to vaccination ("anti-vaxxers") make society susceptible to explosive outbreaks of numerous diseases [8]. 

Bevölkerungspyramide
data source: Statistisches Bundesamt

Familial Trends 
Demographic change does not solely affect societies: it also affects the family by changing its composition. In the 19th century, only a minor proportion of young adults got to know their grandparents. Today, about 80% of people have at least one living grandparent. This causes an increasing demand to nurse the elderly generation, which threatens individuals’ financial, psychological and physical abilities [6]. Thanks to improvements in gender equality and the education of women, the mean age at first childbirth has increased from 21 years in the 1970s to 25 years today. Together, these factors cause a “crunch” situation for people in their 50s and 60s where raising their children and caring for their own parents compete [6]. 
Demographic change also affects how family members interact and take care of each other: As families become smaller, parents distribute their money and time more equally among their offspring and grandchildren [6].
Demographic change may appear to be a problem of Western countries, but it is definitely a global one. Ten years ago, the WHO reported a global mean age of 27.6 years, with 10% of the population being older than 60 years. By 2050, the United Nations expects the mean age to be 38 years with 22% of people being older than 60. Further, the proportion of children is predicted to decrease from 30% to less than 20% [9]. The socio-economic impact of these changes cannot be ignored.

[1] bit.ly/1ScMbK1 
[2] http://bit.ly/1PSObsc 
[3] bit.ly/1PMdwy2 
[4] http://bit.ly/1KUTobt 
[5] http://bit.ly/1JVUjxq 
[6] Seltzer and Bianchi, Annu Rev Sociol, 2013 
[7] Warth et al., Virchows Arch, 2015
[8] Geard et al., Epidemics, 2015 
[9] http://bit.ly/1Is6Qaq 

by Bettina Schmerl, PhD student AG Shoichet
This article originally appeared 2016 in CNS Volume 9, Issue 1, The Aging Brain